Charity Information
Disseminating information to our membership via leaflets, our TOF Book, periodic newsletters, social media and website. Running conferences and other gatherings where patients and their families can learn about the condition, its causes, treatment and ongoing management. Provision of pastoral support. Liaising and collaborating, where appropriate, with medical professionals and researchers.
Who the charity helps
- Children / Young People
- People With Disabilities
What the charity does
- General Charitable Purposes
- The Advancement Of Health Or Saving Of Lives
How the charity helps
- Provides Advocacy / Advice / Information
- Provides Services
- Sponsors Or Undertakes Research
Areas this charity operates
Total Income
Financial year ending 31st Dec 2024
Total Expenditure
Financial year ending 31st Dec 2024
Trustees
Upcoming Events
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