Charity Information
We help families of babies born with Blepharophimosis, Ptosis and Marcus Gunn Jaw Winking Syndrome in many ways. We host regular online meetings for families where they can share their stories and get information. We raise money to help families get crucial surgery when they cannot afford it. We build a community and provide support for these rare conditions.
What the charity does
- Disability
- General Charitable Purposes
- The Advancement Of Health Or Saving Of Lives
Who the charity helps
- Other Defined Groups
How the charity helps
- Provides Advocacy / Advice / Information
- Provides Services
Areas this charity operates
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Trustees
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