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About
Working to provide learning conferences, collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for EDS & HDS population. A community of individuals, caregivers, healthcare professionals, and supporters, dedicated to saving and improving the lives of those affected by EDS, HSD and related conditions.
What they do
Who they help
How they help
Where they work
Finances
- £1,552,526
- Income
- £1,409,241
- Spending
- 11
- Trustees
Financial year ending 30 April 2025, from the Charity Commission register.