Charity Information
Provides support to children and adults affected by 1p36 deletion syndrome and their families in the UK, in particular, but not exclusively, by arranging a conference every other year to share research and practice concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome.
Who the charity helps
- People With Disabilities
How the charity helps
- Provides Advocacy / Advice / Information
- Provides Services
What the charity does
- The Advancement Of Health Or Saving Of Lives
Areas this charity operates
£16,812.00
Total Income
Financial year ending 31st Mar 2024
£12,439.00
Total Expenditure
Financial year ending 31st Mar 2024
3
Trustees
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