Charity Information
We provide support and information to individuals, families and health professionals who are affected by, or come into contact with Ring Chromosome 20 Syndrome, or r(20) for short, an ultra-rare disease, the main symptom being difficult to treat epilepsy.We raise funds to help promote research into r(20) to try to improve overall quality of life for those living with the disease.
Who the charity helps
- Children / Young People
- People With Disabilities
What the charity does
- Disability
- The Advancement Of Health Or Saving Of Lives
How the charity helps
- Provides Advocacy / Advice / Information
- Provides Services
Areas this charity operates
Total Income
Financial year ending 31st Mar 2025
Total Expenditure
Financial year ending 31st Mar 2025
Trustees
Upcoming Events
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