Charity Information
The Pompe Support Network is an organisation developed by the UK Pompe community in order to support others within the community. Together we: - Provide peer to peer support - Support research into medical and supportive care. - Provide information about promising medical developments. - Advocate for access to medical therapies or devices. - Share life experiences
Who the charity helps
- Children / Young People
- Elderly / Old People
- People With Disabilities
What the charity does
- Disability
- The Advancement Of Health Or Saving Of Lives
How the charity helps
- Makes Grants To Individuals
- Makes Grants To Organisations
- Provides Advocacy / Advice / Information
- Provides Services
- Sponsors Or Undertakes Research
Areas this charity operates
Total Income
Financial year ending 31st Mar 2025
Total Expenditure
Financial year ending 31st Mar 2025
Trustees
Upcoming Events
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