Charity Information
The relief of disability and the extension of life for those suffering from myotubular myopathy, by promoting the study of, and research into, the treatment and cure of the muscle weakness caused by myotubular myopathy.The charity was incorporated in 2010 and the old charity number was 1113809 which should be referred to for activity up to this date.
Who the charity helps
- Children / Young People
- People With Disabilities
What the charity does
- Disability
- The Advancement Of Health Or Saving Of Lives
How the charity helps
- Makes Grants To Individuals
- Makes Grants To Organisations
- Provides Advocacy / Advice / Information
- Sponsors Or Undertakes Research
Areas this charity operates
Total Income
Financial year ending 31st Dec 2024
Total Expenditure
Financial year ending 31st Dec 2024
Trustees
Upcoming Events
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