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Myotubular Trust

Charity Number 1137177

Charity Information

The relief of disability and the extension of life for those suffering from myotubular myopathy, by promoting the study of, and research into, the treatment and cure of the muscle weakness caused by myotubular myopathy.The charity was incorporated in 2010 and the old charity number was 1113809 which should be referred to for activity up to this date.

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Who the charity helps

  • Children / Young People
  • People With Disabilities

What the charity does

  • Disability
  • The Advancement Of Health Or Saving Of Lives

How the charity helps

  • Makes Grants To Individuals
  • Makes Grants To Organisations
  • Provides Advocacy / Advice / Information
  • Sponsors Or Undertakes Research

Areas this charity operates

Gallery

£138,416.00
Total Income
Financial year ending 31st Dec 2024
£148,309.00
Total Expenditure
Financial year ending 31st Dec 2024
6
Trustees

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Trustees

Myotubular Trust | Charici

PATRICIA ALLEN

Appointed 14 years ago
Myotubular Trust | Charici

ANNE LENNOX

Appointed 2 months ago
Myotubular Trust | Charici

ANDREW LENNOX

Appointed 2 months ago
Myotubular Trust | Charici

JAMES ROSLING

Appointed 2 months ago
Myotubular Trust | Charici

LISA BASHORUM

Appointed 5 months ago
Myotubular Trust | Charici

ZACHARY RICHARD HUGHES

Appointed 5 months ago