Charity Information
To preserve and protect the health of individuals diagnosed with and affected by CDKL5 in particular by, providing assistance and advocacy in the form of support groups for the patient community. Providing up to date and relevant information to individuals and their representatives diagnosed with the condition.
Who the charity helps
- Children / Young People
- Other Charities Or Voluntary Bodies
- People Of A Particular Ethnic Or Racial Origin
- People With Disabilities
What the charity does
- Disability
How the charity helps
- Makes Grants To Organisations
- Provides Advocacy / Advice / Information
- Provides Services
Areas this charity operates
Total Income
Financial year ending 31st Mar 2025
Total Expenditure
Financial year ending 31st Mar 2025
Trustees
Upcoming Events
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