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Charity Information

A supportive, informative, national networking organisation for the families, carers and professionals giving care to children and adults with Batten Disease and for promoting awareness of, and research into, the disease

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Who the charity helps

  • Children / Young People
  • People With Disabilities

What the charity does

  • Disability
  • Education / Training
  • The Advancement Of Health Or Saving Of Lives

How the charity helps

  • Provides Advocacy / Advice / Information
  • Provides Services
  • Sponsors Or Undertakes Research

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Trustees

Upcoming Events

    There are currently no upcoming events for Batten Disease Family Association Cio listed on Charici. Check the charity's official website for more information.

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Volunteering

Batten Disease Family Association Cio is accepting volunteers. Please review the official charity website or contact them using the details on this page for more information.

Trustees

Batten Disease Family Association Cio | Charici

SIMON DAVID SEWART

Appointed 1 year ago
Batten Disease Family Association Cio | Charici

DR ZLATKO SISIC

Appointed 1 year ago
Batten Disease Family Association Cio | Charici

MARK ALEXANDER THOMPSON

Appointed 1 year ago
Batten Disease Family Association Cio | Charici

ROBERT JAMES PETER THOMPSON

Appointed 1 year ago