Charity Information
Alstrom Syndrome Europe is a network of medical and scientific professionals from across the EU working to educate and share information and promote research into the many complex aspects of the ultra rare disease Alstrom Syndrome. The medical professionals work with affected patients in their respective countries and liaise with patient groups.
How the charity helps
- Acts As An Umbrella Or Resource Body
- Provides Advocacy / Advice / Information
- Provides Services
- Sponsors Or Undertakes Research
Who the charity helps
- Children / Young People
- People Of A Particular Ethnic Or Racial Origin
- People With Disabilities
What the charity does
- Disability
- General Charitable Purposes
- Recreation
- The Advancement Of Health Or Saving Of Lives
Areas this charity operates
Total Income
Financial year ending 5th Apr 2025
Total Expenditure
Financial year ending 5th Apr 2025
Trustees
Upcoming Events
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