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About
FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects together with supporting families impacted. Activities include supporting fundraisers, holding fund raising events, biennial conferences, family weekend and working with doctors and researcher to find a treatment and cure.
What they do
Who they help
How they help
Where they work
Finances
- £142,840
- Income
- £182,893
- Spending
- 6
- Trustees
Financial year ending 31 December 2024, from the Charity Commission register.