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Charity Information

FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects together with supporting families impacted. Activities include supporting fundraisers, holding fund raising events, biennial conferences, family weekend and working with doctors and researcher to find a treatment and cure.

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Who the charity helps

  • Other Charities Or Voluntary Bodies
  • Other Defined Groups
  • The General Public / Mankind

How the charity helps

  • Provides Other Finance
  • Sponsors Or Undertakes Research

What the charity does

  • The Advancement Of Health Or Saving Of Lives

Areas this charity operates

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£83,617.00
Total Income
Financial year ending 1st Mar 2024
£58,322.00
Total Expenditure
Financial year ending 1st Mar 2024
7
Trustees

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    There are currently no upcoming events for Fop Friends listed on Charici. Check the charity's official website for more information.

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Trustees

Fop Friends | Charici

RACHEL ALMEIDA

Appointed 13 years ago
Fop Friends | Charici

ALISON ACOSTA BEDFORD

Appointed 13 years ago
Fop Friends | Charici

MR CHRIS BEDFORD-GAY

Appointed 13 years ago
Fop Friends | Charici

FIONA WHITE

Appointed 12 years ago
Fop Friends | Charici

JOHN LEAVER

Appointed 12 years ago
Fop Friends | Charici

HELEN BEDFORD-GAY

Appointed 10 years ago
Fop Friends | Charici

ANDREW RANKIN

Appointed 1 year ago