Charity Information
Support children and young adults suffering from Familial Dysautonomia. We pay for physio and therapy and medicine not available under the NHS, financial help for the families who need respite care. Assist with travel to USA FD centre for assessment and treatment. We update sufferers and families with information of research and treatments and information about genetic testing .
Who the charity helps
- Children / Young People
- People Of A Particular Ethnic Or Racial Origin
- People With Disabilities
What the charity does
- Disability
- Education / Training
- Other Charitable Purposes
- The Advancement Of Health Or Saving Of Lives
How the charity helps
- Makes Grants To Individuals
- Makes Grants To Organisations
- Provides Advocacy / Advice / Information
- Provides Human Resources
- Provides Other Finance
- Sponsors Or Undertakes Research
Areas this charity operates
Total Income
Financial year ending 31st Dec 2024
Total Expenditure
Financial year ending 31st Dec 2024
Trustees
Upcoming Events
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