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Bardet-Biedl Syndrome UK (Bbs UK)

Charity Number 1181244

Charity Information

BBS UK provides support, information and advocacy services. It organises an annual family conference, a family activity weekend and social weekend for adults living with the syndrome. The charity maintains a website and produces twice-yearly newsletters, an annual Conference Report, information leaflets and online resources.

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Who the charity helps

  • Children / Young People
  • People With Disabilities

What the charity does

  • Disability
  • General Charitable Purposes
  • The Advancement Of Health Or Saving Of Lives

How the charity helps

  • Provides Advocacy / Advice / Information
  • Provides Services
  • Sponsors Or Undertakes Research

Areas this charity operates

Gallery

£395,748.00
Total Income
Financial year ending 31st Mar 2025
£294,676.00
Total Expenditure
Financial year ending 31st Mar 2025
9
Trustees

Upcoming Events

    There are currently no upcoming events for Bardet-Biedl Syndrome UK (Bbs UK) listed on Charici. Check the charity's official website for more information.

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Volunteering

Bardet-Biedl Syndrome UK (Bbs UK) is accepting volunteers. Please review the official charity website or contact them using the details on this page for more information.

Trustees

Bardet-Biedl Syndrome UK (Bbs UK) | Charici

DIANNE JULIE HAND

Appointed 7 years ago
Bardet-Biedl Syndrome UK (Bbs UK) | Charici

DR SHEHLA MOHAMMED

Appointed 4 years ago
Bardet-Biedl Syndrome UK (Bbs UK) | Charici

LIAM WILKIE

Appointed 4 years ago
Bardet-Biedl Syndrome UK (Bbs UK) | Charici

CHETANKUMAR MESHRAM

Appointed 2 years ago
Bardet-Biedl Syndrome UK (Bbs UK) | Charici

GARETH OWENS

Appointed 2 years ago
Bardet-Biedl Syndrome UK (Bbs UK) | Charici

BILAAL ALI

Appointed 1 year ago
Bardet-Biedl Syndrome UK (Bbs UK) | Charici

EMMA HUGHES

Appointed 1 year ago
Bardet-Biedl Syndrome UK (Bbs UK) | Charici

RACHAEL ANNE ZIMBLER

Appointed 7 years ago
Bardet-Biedl Syndrome UK (Bbs UK) | Charici

NATASHA MURRAY

Appointed 7 months ago